The slow crawl to spectacular
I saw a pulmonologist this week and it could not have gone better.
A little over 2 months ago, I got sent for a lung function test. Afterwards, a doctor called me and told me that my lungs were fine and to stop taking the medication I had been taking. And I was upset. Because my lungs were very clearly not fine.
It was more of the same thing that I had always felt about doctors growing up. That nobody was listening to me. That the relationship was about power and submission. And that I was always the small one expected to submit. They were the doctors. They knew everything. I knew nothing.
But I was feeling panicked and crazy and scared. And I called a friend crying and she told me that she had to learn to advocate for herself with doctors. That it was a skill. And that I should figure out what I want for myself. Which is so not how I have ever thought about doctors.
So first, I took the doctor’s advice, knowing I already had a pulmonologist appointment, and I stopped taking the medication. And then I started taking notes on my lung function every day in my journal. And how often I had to take a different medication (fast acting instead of long lasting.) And then I psyched myself up to duke it out with this pulmonologist to get back on the medication that had been helping. Because no matter what that test said, there was something wrong!
But I walked in and he looked at my test results – the same ones from months ago when they told me my lungs were great – and he said I have a very specific kind of asthma. That the tests look great because I seem to be at the highest level of lung function, but that it’s misleading because actually, there is too much air in my lungs. I am getting air trapped in there and then breathing more air on top of it. And then he asked me how I felt being on the original medication and I told him “spectacular.” So he put me back on it. I didn’t even have to make the request.
But wait. There’s more! He then told me that this particular kind of asthma often goes away on its own and that we will revisit it in 6 months, but there is a good chance that this too shall pass.
Then he said I could take a blood test and they could see if I had certain markers for asthma. But I told him that I have a really hard time with blood tests and that if it was necessary I would but I would rather not. And he told me that it was not necessary at this point. So we wouldn’t do it.
Before I got my eating under control, life happened to me all the time. I was powerless. I was just dragged along. And I didn’t even realize that there was another way.
When I put boundaries around my eating, I got clarity. I got responsibility. I got the ability to ask for help. To learn a new way to do things.
But also, I just want to note that it took 16 years of having my eating under control plus a health condition to actually go to the doctor. And the help and guidance of loved ones to begin to understand how to navigate that world. So I’m not saying it’s quick, I’m just saying it’s a slow crawl to “spectacular.”
